In this heartfelt and humorous episode Brooke Eby, social media advocate and ALS warrior, shares her journey of living with and raising awareness about ALS. From her initial symptoms to her diagnosis years later, Brooke talks candidly about the misconceptions surrounding ALS, her work with Salesforce to support the ALS community, and her viral social media content that combines advocacy with humor. With anecdotes ranging from her dating life, as she swipes right and left, to running a nonprofit, Brooke shares how she navigates challenges while inspiring others to get involved in the fight against ALS.
Takeaways:
Misconceptions About ALS: Many people, including Brooke herself, associate ALS with older men, but 90% of cases are not genetic, and the disease affects diverse populations.
The Power of Humor: Brooke uses humor on social media to engage audiences and raise awareness, proving that tough conversations don’t always have to be heavy.
Community Matters: From starting a Slack-based support group to building connections with others diagnosed with ALS, Brooke emphasizes the importance of community in fighting the disease.
Advocacy Through Storytelling: Sharing personal experiences helps humanize ALS and creates a relatable entry point for people to learn about and support the cause.
Innovative Solutions for ALS Support: Brooke’s nonprofit leverages technology, like Slack, to centralize resources and make navigating life with ALS easier for patients and caregivers.
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Want to Learn more about Brooke eby?
Everywhere: @limpbroozkit
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A Human Content Production